[Commlist] Call for Chapters: Communicating Rare Diseases and Disorders in the Digital Age

Call for Chapters: Communicating Rare Diseases and Disorders in the 
Digital Age

Introduction

A primary concern of rare diseases diagnosis is the lack of accurate 
information that, consequently, may lead to its delays, inaccurate 
treatments or rehabilitation interventions and social consequences. 
Although attention has been drawn to rare diseases with the Orphan Drug 
Act of 1983 in order to encourage pharmacology to develop new drugs, 
there is still lack of patients’ tracking and information about the 
diseases’ causes and incidence. Health communication continues to be 
one-way and rely heavily on the expertise from the health 
professional/practitioner and in such a broad spectrum of rare diseases, 
patients may find it hard to obtain timely information, accurate 
diagnosis, appropriate treatments and surgeries, medication or/and 
psychological counseling in their own countries. The use of Information 
and Communication Technologies open up avenues for future research on 
health communication, pathophysiology, innovative provider-patient 
mediated interactions, rare diseases initiatives, media and health 
campaigns, biostatistics and health monitoring.


Objective

The aim of this book is to provide theoretical and empirical research 
about the use of computer-mediated communication in rare diseases and 
disorders. It differs from other published books as it is trans 
disciplinary, bringing to the fore current advances in health 
communication, computer science and epidemiology. In addition, the book 
covers the following trends and important issues in health-related 
communication and disease management: the use of social media and 
awareness to rare diseases, blockchain in rare disease data and its 
record management, computer-assisted aided diagnosis, ethics, media 
coverage, biostatistics and health monitoring.


Target Audience

The target audience of this book will be students, researchers, and 
practitioners with interests in health communication, rare diseases, 
technology-enabled health, epidemiology, information visualization, 
biostatistics and computer-mediated communication and marketing. As the 
book addresses health computer-mediated communication aspects and 
disease management, it will be beneficial to such stakeholders as 
physicians, patients, researchers, health professionals and 
practitioners, caregivers and decision-makers.


Recommended Topics

Social media and awareness to rare diseases
• Blockchain in Rare Diseases Data
• Managing eHealth open data and Rare Diseases Records
• Online communities, Sociometry and Rare diseases support
• Cases of Rare Diseases Communication Using Digital Technologies
• Computer-assisted aided diagnosis of rare diseases
• Digital technology and epidemiology of rare diseases
• Ethics in the use of ICT in rare diseases
• Communication and legislation in rare diseases and orphan medicines
• Sociotechnology and rare diseases
• Media coverage about different types of rare diseases
• Communication of rare diseases throughout time
• Health computer-mediated communities and rare diseases
• Media campaigns and the drug-oriented market in rare diseases
• Statistics and data about the prevalence of rare diseases
• Patient experiences and stories shared in the media
• Health monitoring and disease management through digital devices


Submission Procedure

Researchers and practitioners are invited to submit on or before 
February 9, 2019, a chapter proposal of 1,000 to 2,000 words clearly 
explaining the mission and concerns of his or her proposed chapter. 
Authors will be notified by February 14, 2019 about the status of their 
proposals and sent chapter guidelines. Full chapters are expected to be 
submitted by March 16, 2019, and all interested authors must consult the 
guidelines for manuscript submissions at 
http://www.igi-global.com/publish/contributor-resources/before-you-write/ 
prior to submission. All submitted chapters will be reviewed on a 
double-blind review basis. Contributors may also be requested to serve 
as reviewers for this project.

Note: There are no submission or acceptance fees for manuscripts 
submitted to this book publication, Trust in Knowledge Management and 
Systems in Organizations. All manuscripts are accepted based on a 
double-blind peer review editorial process.

All proposals should be submitted through the eEditorial Discovery®TM 
online submission manager.


Publisher

This book is scheduled to be published by IGI Global (formerly Idea 
Group Inc.), publisher of the "Information Science Reference" (formerly 
Idea Group Reference), "Medical Information Science Reference," 
"Business Science Reference," and "Engineering Science Reference" 
imprints. For additional information regarding the publisher, please 
visit www.igi-global.com. This publication is anticipated to be released 
in 2020.



Important Dates

March 20, 2019: Full Chapter Submission
April 15, 2019: Review Results Returned
May 15, 2019: Final Acceptance Notification
May 30, 2015: Final Chapter Submission


Inquiries

Sónia Oliveira
CICECO, University of Aveiro, Portugal
(sonia.oliveira /at/ ua.pt)

Liliana Vale Costa
DigiMedia, University of Aveiro, Portugal
(lilianavale /at/ ua.pt)

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